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Prayers For Preslee

Prayers for Preslee:

Preslee was born November 4, 2013 with DiGeorge Syndrome. Tetrology of Fallot, Pulmonary Atresia with VSD & MAPCA (Major AortoPulmonary Collateral Arteries.) Preslee's Heart is simply what doctors call extroardinary as it is not that of any heart they have seen. The structure of heart is so complex its difficult to explain in detail. With this she immediately required multiple surgeries, including a complete open heart surgery by the time she was one year old. After her complete repair Preslee was diagnosed with Pulmonary Hypertension (Incurrable) due to the amount of pressure that was built up within her pulomonary arteries. This made Preslee that much more of a "Complex Patient" in terms of her treatments, surgeries, and care. At the time of her diagnosis, doctors didnt know the length of life Preslee had to live but they worked to manage her medications (one being administered 24hrs a day via pump into her arm that was considered "Life Sustaining". This medication administration has been extremely difficult on Preslee as well as Brooke throughout the last five years. Although Preslee has had her fair share of hospital stays and scares over the last 4 years she has continued to remain stable on her current treatment from the outside Preslee looked like she was doing so good... but this February after a 8hr heart cath procedure we found out some extremely scary news. Preslee had a very large blood clot that had formed from her valve leaking. Also the heart cath procedure(done to help baloon or blow up her arteries to allow more blood flow) was no longer effective as the arteries are no longer staying open. Due to the severity of her current situation
1. Preslee's Heart Anatomy 2. Preslee's Pulmonary Hypertension 2. Preslee's Large Anuerism(blood clot) sitting right beneath her sternum which has a huge risk on its own (If this Anuerism was to move from the location it has been it could take her life) doctors felt best to bring her case in front of hundreds of doctors who specialize in the heart. We have been waiting for several weeks for this meeting and today her case was talked about in length to find out the best possible option for Preslee. Dr. Landstrom (Preslee's Cardiologist contacted Brooke today to reveal the results of this discussion. They want to send Preslee to Dr. Frank Hanley, only if she is able to be a candiate for the operation ( with all that Preslee has going on it could be that she may not be a candiadate). Dr. Hanley is considered the Dr. who fixes hearts that can't be fixed. His specialty is in treating children with no options remaining to save their life. He is able to actually go into the lung artries themselves where in the heart cath procedures they are only able to get so far. Dr. Hanley is at Stanford Childrens in CA. Which means Preslee & Brooke would have to go there to have the surgery performed. This process would be a quick process as they cant waist anytime. The first step is even seeing if she is a candidate for the operation (a lot goes into this process of deciding but it ultimately comes down to whether they feel the chance of it being sucessful enough to save her life. The risks of this surgery are obviously extremely high anyways simply because of the Anuerism and heart condition as a whole. If she doesnt qualify as a candidate it basically means they have no other options for Prelsee and with her Arterial Pressures being at 75-80% this pressure will only get higher and higher. Brooke is oviously completed devastated at this news and is so overwhelmed as the rest of the family...either option is hard to grasp. We want to keep her forever!!! If Preslee passes as a candidate Brooke will need to take her to CA and stay with her there at Stanford for as long as she is required to be there, if she does not qualify Brooke wants to spend her time with Preslee making as many fun memories as she possbily can. So this is open to help her to cover costs in the time in CA and to just be able to love on her baby without worrying over bills, ect.

Organizer

Shelby Alley
Organizer
Montgomery, TX

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