Updated posted by Timothy Harrison 16 days ago
things i am quickly learning dialysis...
things i am quickly learning dialysis day 2
no matter how well you think you've shaved your arm, the tape will dutifully remind you that you missed a few strands
typing with 2 fingers on one hand is way harder than typng with 2 fingers on both hands
i may not look manly covered in a bright pink blanket with butterflies and flowers, but, i take great pride in knowing that it was a heart felt gift shared by a 6 year old angel
life's maladies are completely indiscriminate...i am joined by all races creeds colors and sexes.
medical personnel have the power to make someone's day significantly brighter or significantly darker.
i am surrounded by wonderful medical personnel.
3 hours goes by surprisingly fast.
finally, in spite of time flying, as mentoned above, i should not be left alone with my thoughts for 3 hours. they may have to switch me to a slightly more padded room!
Updated posted by Timothy Harrison 18 days ago
Woke up early this morning feeling...
Woke up early this morning feeling fresh. I didn't feel nervous, I simply went through my morning ritual of showering. Unsure of proper protocol, I didn't eat breakfast or have coffee.
As we arrived at the Dialysis Center, I felt no anxiety, we simply walked in and sat down. There were two patients in the lobby, I made a mental note that they both had blankets. There was no one at the reception desk, so we sat and we waited.
In a few minutes the first patient was called. He simply got up and walked into the center, a sequence repeated by the second patient.
Finally, Grace, a pleasant looking woman greeted us. She sat sweetly next to us with a stack of papers to sign, all of which suddenly sounded legaleze for "we are here to torture you and you cannot sue us".
Once complete, we followed Grace in to the center, where we found 12 very comfortable looking chairs, all with a patient in some form of a relaxed state with two tubes protruding from each. None of the patients seemed in any form of distress.
Grace asked me to step on the scale, which registered 178.5 (actually 81 kilograms). I then followed Grace to my chair, where she immediately fit my right arm for a blood pressure cuff. No sooner had she done that, then the room began to swoon. I didn't feel like I was stressed or anxious, maybe it was the suddenness of it all, I really can't explain it, but, it was the most uncomfortable feeling I have had for as long as I can remember. I quickly sat down, I nearly passed out, and I felt like I had to puke. I was sweating profusely and poor Angie was looking at me with very fearful eyes.
I was quickly met by a super nice nurse named Andrew, who, more laughing with me than at me, seemed to understand what I was going through. He got me a glass of water and waited patiently for me to regain some color.
After a few minutes, I felt fine again and he gently inserted 2 needles into my left arm. He connected the needles to the tubes leading into the machine, and the maching began to pump blood from my body, through a filter, and back into my body. There was absolutely no pain, there was nothing. I just sat and let it happen.
At one point, I did get cold. Andrew brought me a sheet, but, suggested that I find a favorite blanket to bring along. All of my blankets have dog hair on them, so, I'm not sure what I am going to do.
I got super hungry, so Angie went on a mission to find a bagel.
Andrew and Grace continually checked on me and advised me to let them know if I felt any cramps. Dialysis serves 2 functions, first, it cleans the minerals from your blood, second, it removes excess fluid from your body, which is exactly what your body does through urination. As my kidneys continue to fail, I will actually lose the ability to pee.
At one point I began to get crampy. They continued filtering the blood, but, returned the fluids to my body. They actually set a goal of fluids to remove each session.
When my time was up, they asked me to stand. Here is when everything went wrong. My blood pressure, a very comfortable 135/72 while sitting, dropped immediateely to 80/40. I felt very dizzy and that cold sweat returned. As I sat, it took a few minutes to recover for a second attempt, followed by a thrid and fourth. Finally, we all agreed that I would just sit tight for 15 minutes or so. It was fun watching Angie's face as she watched my blood pressure drop...it very much reminded me of when she was in labor and I was watching her contraction monitor fly off the charts, trying not to react to how intense it was.
To help overcome the problem, they put some saline back into my system. They were laughing, because their goal was to take fluids from me, but, they actually put more in than they took out. They weren't overly concerned, because I still urinate frequently.
While I was recovering, Joan, my social worker, stopped by to have me fill out some more paperwork.
I was finally OK to go home. I felt tired, but, otherwise OK. I got home, laid down on the couch at 12:30, and woke up at 6pm.
Now I can't wait to do it all again. I have 36 hours to find a blanket with no dog hair and shave my arm (they use a lot of tape).
Until we meet again!
Updated posted by Timothy Harrison 19 days ago
Well my days of dodging the...
Well my days of dodging the bullet have come to a crashing halt. I begin dialysis tomorrow morning from 7-10am. Every Tuesday, Thursday, and Saturday from 7-10, as a matter of fact. I have no idea what to expect. I am told I won't feel too hot for the first month or so. Just means I can probably catch up on some well needed sleep.
I am tthinking about bring my laptop with me so I can do a live play by play post, but, I fear that either A. it will be too gory for some people to comprehend and they will want their donations back, or B it will be anticlimactic. I mean they are only going to stick a massive needle in, hook me to a machine, and spend 3 hours changing my oil. Probably not really alot to describe.
My sincerest hope is that I have some sort of magical hallucination American Indian spiritual dream with eagles, wolves, and prairie dogs.
None-the-less, I will update as soon as I feel up to it.
Until next time, please keep me and Angie (she has to get up way early to drive me and she does not like to get up early unless she absolutely has to) in your thoughts and prayers for the day.
TTFN
Created by Timothy Harrison on June 17, 2010
About This Page
Hello,
As many of you know, Tim is at the beginning of a very long journey and will need support in many ways. Tim has Polycystic Kidney Disease (PKD) which is a kidney disorder passed down through families in which multiple cysts form on the kidneys, causing them to become enlarged. There have been dozens of relatives and friends that have offered to donate a kidney to Tim and those that know him can fully understand why so many people are willing to give such an incredible selfless gift. Tim is blessed with many friends and family and the support has been greatly appreciated.
Although many people have asked to be a donor for Tim, there will only be a handful that will possibly match and then it will come down to one.
Polycystic Kidney Disease (PKD) is passed down through families (inherited), usually as an autosomal dominant trait. If one parent carries the gene, the children have a 50% chance of developing the disorder.
Autosomal dominant PKD occurs in both children and adults, but it is much more common in adults, with symptoms often not showing up until middle age. It affects nearly 1 in 1,000 Americans. The actual number may be more, as some people do not have symptoms. The disorder may not be discovered unless tests revealing the disease are performed for other reasons.
An autosomal recessive form of polycystic kidney disease also exists and appears in infancy or childhood. This type tends to be very serious and progresses rapidly, resulting in end-stage kidney failure and generally causing death in infancy or childhood.
Persons with PKD have multiple clusters of cysts form on the kidneys. The exact action that triggers cyst formation is unknown. In early stages of the disease, the cysts cause the kidney to swell, disrupting kidney function and leading to chronic high blood pressure and kidney infections. The cysts may cause the kidneys to increase production of erythropoietin, a hormone that stimulates production of red blood cells. This leads to too many red blood cells, rather than the anemia seen in chronic kidney disease.
For Tim, his kidney function is down to about 10%. His blood pressure and cholesterol levels are very high and he is taking medications to help control this. He will be on dialysis until a donor can be located. This process will take several months after he has been put on the transplant list. He can't be put on the list until he begins dialysis, which should be some time in August. He was feeling good until they changed his diet so drastically. He can no longer eat red meat or drink alcohol (other than red wine). He can't have salt or potassium and there is a huge list of other things he can't have. He gets pretty tired now. Once he starts dialysis I am sure his energy will increase. He still really has a great attitude and is trying to maintain as much normalcy as possible in the family.
Here is how you can help!!
The transplant is covered for the donor and I know Tim has insurance that will cover 100% of the surgery. I think we can all attest that co pays, prescriptions, and lab work can all take a toll on the mind, body and pocketbook. In addition, he will have additional costs out of pocket such as extra gas for dialysis treatments 3 times a week, special diet needs and possibly additional loss of income while he takes the time off of work to meet the needs of his program and his health. After his transplant, Tim will have to take an anti-rejection medication for the rest of his life. There is also a very strong possibility that Tim’s sister, who lives in
For I am the LORD, your God,
who takes hold of your right hand
and says to you, Do not fear;
I will help you. Isaiah 41:13
But I will restore you to health
and heal your wounds,'
declares the LORD, Jeremiah 30:17
For more information on Kidneys and PKD please visit:
http://www.kidney.org/Recent Donations (54)
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All I can say is Wow! Actually, I can say soooo much more but since I'm not trying to be negative, let me say that God has this and will put you exactly where you NEED to be!!! Love you Tim! You're awesome!
posted by Diana Fugate 9 months ago
no dye - no die right? I agree 100%, you are responsible for being an informed, educated and involved healthcare team member. I also believe that those who are invested in the medical profession and are the primary healthcare providers should pay attention to the details! I'm so glad you caught that one. So now I'm a little confused. What do you mean downgraded to a benign echo? No heart cath? Love and prayers alsways. RSM
posted by Rebecca 15 months ago
Tim, Believe it or not, this is a blessing! God sent Dr. Reddy! HE is going to take care of this for you - "you ARE healed in the name of Jesus!" That being said...I'm impressed with your always awesome attitude! You crack me up! Keep it up! Praying for you everyday!
posted by Diana Fugate 15 months ago
Timmy, didn't I tell you that I only travel first class!! HE HE!! Glad to be on this journey with you.
posted by TeTe 16 months ago
Hey Tim: Glad to see that all this kidney drama hasnt ruined your sense of humor!!!!! Its still as bad as I remember it!!!!! LOL..You r in our thoughts n prayers everyday!!!!! Tell family hello
posted by CRIS JUSTIS 16 months ago
I am so glad to hear you are hanging in there. AZ is rooting for you. Irma and Family
posted by Irma 17 months ago
Tim, Excellent news and progress. I am glad to see you are "following the rules" and it is paying off. Keep up the good work and let me know if you ned anything... God is good :)
posted by Mike 17 months ago
Tim, I'm so proud of you and how well you have been taking care of yourself! And I love how Amanda is such a good food police...hahaha. Dialysis in a month? No problem...we love new experiences. Love you!
posted by A Facebook user 18 months ago
Dear Tim a d Family, We are with you and Gil will be saying prayers and lighting candles. I will keep you close at heart and in my thoughts. God bless and keep you strong, love vicki
posted by gil & vicki 19 months ago
Hello-I was checking out GoFundMe, as I just finished using it for a fundraiser I am working on to get my friend a new liver. This is a great service, and I am glad you got it to the main page too :) Good luck to Timmy--I wish him and his family the best. xxoo Eve in Tampa Bay
posted by Eve 19 months ago
Thanks very much to John and Toni Watkins who handed Tim a $100 bill that I am going to use right now to pick up 4 medications and a special daily vitamin that is specifically made for kidney patients. Sorry, Tim, that you have to take so many pills in one day. xoxoxox
posted by sanpedroangie@cox.net 19 months ago
Tim, the thing is...you would do it for any one of us. You are truly an amazing man. We love you! XOXOXOXO
posted by Teri North 19 months ago
I am so proud to be a part of such a wonderful, loving and giving family. There were 9 of us...4 inflicted with this disease...one that we already lost...that leaves 5 of us to give what we can, whether it be a kidney or a wonderful website to raise money to support this endeavor. I hope the message goes out that we appreciate anything you can do from financial support to a phone call to hear Tim's blood rushing..LOL..to prayers for the family for the success of the impending transplant. Thank you for being so wonderful...Mary Anne
posted by Martrajam 19 months ago
Mikey, This site is totally awesome. Thanks for being a great little brother! Listening to Tim's blood flow thru his arm after his fistula is sooo cool. Ask to hear it the next time you see him! xoxox, Love you Timmy!
posted by sanpedroangie 19 months ago
Mikey, The support I have received from all corners of my world have been humbling and a bit overwhelming. Thank you for creating a single source for me to convey updates and grattitude. Tim
posted by Tim Harrison 19 months ago
So a little explaination of what Tim got... It's called an AV fistula. It's the "gold standard" in dialysis access these days. They still do shunts and ports and grafts and a few other things, but the fistula has the lowest infection rate and isn't something that the patient would have to worry about keeping dry or damaging. Just can't have needle sticks or blood pressures done on the side of the fistula other than from the dialysis nurse. It takes a couple of weeks to fully mature and then it's ready to go. After it heals you can actually feel the blood rushing through if you place your fingers over the site....if you place a stethescope up to it you can hear a whoosing noise...kinda cool. The fistula basically allows the blood to bypass all of the capillaries and flow much more quickly while in dialysis. Hope you all are doing well!!! LOVE YA! ~Lauren
posted by Lauren 19 months ago